AHHHHHHHHHHHHHHHHHHHHHHH! Is there an easy answer to all of this? I am so tired of hearing one therapist say...yes, Gabe is autistic...then hear another one say...no way...then we get a dx from the neuro. But no direction on where to go. Then the school starts their eval and says...no Gabe isn't autistic...but the neuro at the next appt says...yes he is...
So, I do have a request in for an eval with the child psych at hershey...I am calling to see where he is on the list.
In the mean time I started Gabe in OT for some sensory stuff...now the OT doesn't want to work with him...because she says it isn't sensory it is behavior and OCD and ODD and some ADHD...but she see no autism...FINE....don't work with him...but how can I tell if he is acting a certain way because his little senses don't know how to process what is going on....or if it is straight behavior. Some things are no brainer...smart mouth...behavior...other things are not so easy...like running around the grocery store shaking his head back and forth...and spinning in circles....he isn't being bad then...just not really listening that he needs to stay with me...is it behavior or sensory...are the people bothering him? Are the lights and sounds bothering him? How come he wasn't doing acting that way before the store. How come the rest of his day was shot after going to the store? WHY?
She told me she doesn't know how to help him....yet his private ST says OT would be good for him...I just can't stand this....Here I am with this kid who has an autism dx...who can't sit still to play one game of candy land but can sit for hours and watch the TV or play a video game....I don't know who to go to for help....what I should be doing to help him...other then what I am already doing....and if he can't sit to do work now...how the hell is he going to do it in school? I know he is only 3.6 years old and sitting to do work isn't really important yet...but he will sit and do puzzles with me...and play video games...and anything that is Gabe guided...but as soon as I or anyone else for that matter says we are doing this and Gabe doesn't like that idea...all hell breaks loose....
I am tired of all of this...where is my freaking autism manual? And why do some people say Gabe is autistic....and other people say no way...."they" all tell me not to compare my kid to other kids....yet they are doing just that when it comes to autism...
I can't wait to go see the child psych at hershey....so my kid with a pinch of autism, a dab of OCD, a speck of ODD, and a dash of ADHD can be evaluated. Oh, and lets not forget the dx of apraxia of speech and expressive language disorder...If Gabe's dx's were credentials his name would look like this
Gabriel C. ASD,OCD,ADHD,ODD,CAS,SID,ELD
and me...after surviving all of this silliness I want my name to be
Jessie. Phd....
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